Wednesday, June 15, 2011

The Medical Health Care System Stinks!!

I am a living, breathing human being, who deserves the same respect as anyone else. I am disabled and in a wheelchair......I also have only medicare for my health insurance. And because I don't have any other source of insurance, and only have disability payments as my income, I get treated VERY badly by the health care system!! Case in point is what happened to me yesterday. But first, let me bring you all up to speed. Right after my neurologist put me on a med for my M.S. ( Multiple Scerlosis), he became ill. It has now been 6 months since then, and I have had NO follow up!! I've had some reactions from this med. After a reaction that made me break out in huge blisters, I called my Dr's office and spoke to a nurse. I assumed that she asked one of the Dr's who are there to take care of my Dr's patients. She told me to go ahead and keep take the injections. So I did, and the last reaction darn near killed me!! And I do mean that literally!! So I stopped taking it, and called my neuro's office. Only to be told that there would be no dr's available for two weeks!! So I was just left hanging, not knowing what to do. So I called my reg. medical dr and explained what was going on. He made an appointment for me with another neuro, that was a great deal farther from home. The appointment was yesterday.......This so called Dr was very rude, unprofessional, and unethical!!!! And yes, I mean you, Dr John Spiegel!! He told me and my friend who took me there, that he wasn't taking any new patients......I was stunned and said " Well if I had known that I wouldn't have wasted my time. Why did you not say so, when my Dr called for an appointment???" he just gave a short laugh. He then said that he didn't think that I have M.S. based on a report that had been faxed from my reg neuro's office. I asked to see it.......and guess what?? It clearly showed that I have M.S. lesions, or "plaque" on my brain. And I said "Are you blind?? Or are you unable to read either?? Again, he gave a short laugh. I looked back down at the report and then I realized that it wasn't even the right report!! This one was from years ago. The one that I had before my Dr put me on that med was of my brain AND my spine. That one should numerous large plaque on my brain and my spine. I was trying to explain all this to him, but he kept trying to talk over me, but I wouldn't shut up until I was finished. lol But what he said next made me reach a stage that is very uncommon for me. But I couldn't help it. I've been jerked around and treated so badly by the health care system, that what he said was the very last straw. He said " You look perfectly healthy to me." Now, you see I am used to none knowledgeable people saying that to me. And I hold no grudge, because I know that they just don't know. But a Dr saying this???? One who is supposed to know all about M.S. and the many other diseases that make people look healthy on the outside, while all heck is breaking loose on the inside!! I looked him right in the eyes and said " You will have to forgive me for crying, because I do that when I am beyond furious!! He looked at me a moment then dropped his eyes to somewhere on his desk. Then again that stupid little laugh. At this moment I can not remember my exact words that I said next. They got lost somewhere in the fury. But I told him off big time. Now normally I am not a violent person at all. But I do believe at that moment, that could I have reached him, I would have slapped the taste right out of his mouth!! No, I am not proud to admit that, but it is the truth. And I am still very angry, but I feel that it is a righteous anger. So I know that God won't hold it against me. I have been shoved around and not given the proper care for years. I can't even get medicaid or any help whatsoever. Not even in home care.  Oh after I told my friend to get me out of there, he then contridicted himself, by saying that I had a lot of medical problems and am a very sick person.  And that I needed a specialist. I just glared at him and told my friend again to get me out of there. And we left. Is there anyone out there that could point me in the right direction to get help? Does anyone know how to get in touch with the M.S. Society? Or know what, if anything they could do to help me?  Any info or feedback would be greatly appreciated.

5 comments:

  1. Linda,
    Just sent you some info on Facebook. I have the link to the Georgia MS Society. I also gave them your name, phone number, and address for them to contact you. I'm working on other things too!

    Love,
    Cheryl

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  2. Thank you Cheryl. I sure hope somebody will help Linda. It's horrible the way Linda is just being shuffled around and ignored time and time again!!!!

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  3. Thank you so very much Cheryl!! I copied all of the info that you sent me on facebok. Thank you for all that you are doing. And Peggy thank you too. You two are the bestest and I love you both to pieces!!

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  4. This just makes me nauseous! I wish I knew more about this so I could be of more help. I know about MS because of my dad but nothing like this ever happened to him. I'm praying nothing like this ever happens to you again!

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  5. Thank you Brandi, I know you would help if you could. It seems that I have always had to struggle for everything. And anything that can happen always seems to happen to me. I'm not whining about it, just saying how it's always been. But I have NEVER in my life encountered what I did that day. I know God has a reason for it all. And I will continue as ALWAYS to trust Him. Cheryl and Peggy Lee (possum) have given me lots of things to check into that may be a big help to me. .

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