Those of us who are chronic pain sufferers and/or are disabled, have often asked this question. We want other people to undertand what we are going through. We want them to understand that most of the time our pain is so severe that we can hardly think straight, let alone function. We also want them to understand the fear and frustration we feel at the loss of body functions.
But do we really want them to understand? Because the ONLY way for them to really know, is by suffering what we do. Do we really want our friends and loved ones to go through all of that? Of course not. At least I wouldn't. I would not even wish that on my worst enemy! So be glad that they can't truly know what your day to day life is like. Just love the ones who do try to understand.
But also love the ones that shy away or say something inappropiate or hurtful. They don't mean to be hurtful. They are just scared and don't know what to do. And instead of always expecting others to understand what we are going through; let's try instead, to understand what it's like for them.
Come share my life with all the ups and downs Of living with M.S. and disabilities. I often use humor and know how to laugh at myself. I believe we all need to have a sense of humor to survive.
Tuesday, July 12, 2011
Friday, July 1, 2011
I've Been Betrayed Yet Again!!
My betrayer is my body. The problem began last night as I was readying for bed. To leave my bathroom, it is easier to back out and then back my chair to the left in the hallway. Then I can go forward. Well last night, I did fine coming out of the bathroom, but just as I was backing my chair into the hallway, my usuable hand, the one that works the chair controls, had a severe spasm. Causing hand to jerk hard on the toggle switch....sending me crashing into one of the walls in the hallway. It caused a hole in the wall. True, it is very small....but still it made me so mad!! Today, I've managed to knock over a lot of stuff, including hot coffee. The trash can was next. And of course it had to be filled to overflowing. Over it went sending it's contacts scattering across the kitchen floor. To make it even worse, there was wet coffee grounds in it . I also knocked another cup of coffee off of my little table on the back porch, when I bumped into the table. The flies sure have been loving that!! And the list of catastrophies go on and on. Oh well, just one of those days. Tomorrow just has to be better. ;)
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